So when I first started having migraines in 2011, I would sometimes have a seizure with one. It was only occasional and they could never induce one to catch it on an EEG. They even had me hooked up to an EEG machine overnight in a hospital to make sure there were no anomalies. Because of the experiences of others who had seen me have these seizures and my own experiences of having them, this information along with the medical information told the doctors that they were NOT seizures and my doctor has told me to call them “spells” instead.
I didn’t really care what he called them, but he tried to control the seizures by controlling the headaches. That was working up to a point, but we still never had any answers as to what actually caused these so-called spells, and I was still getting a few migraines a month despite several medications.
That would be my doctor’s downfall, as on the 13th I had 3 spells in a relatively short period of time, and on the 14th I had 3 more. And I had NO MIGRAINE! Not even a little headache.
I ended up in the ER and they gave me something to keep me from having another seizure, but it was short term and told me to follow up with my primary care, and I have an appt with her on Monday. I’m hoping that leads to a change in neurologists.
I can’t believe I haven’t blogged since September! So much has happened since then but right now I’m going through some physical health issues that kind of trump any Bipolar ones I might have gone through in the last 9 months.
In 2011 I had a pressure headache from hell and had a few seizures. Finally, after a few trips to the ER, they did a spinal tap and realized I had an opening pressure of 35, which is WAY more than the 17 it’s supposed to be less than. After 5 days in the hospital, and a couple more spinal taps, they blamed this pressure on the lithium I was on for my Bipolar and told me to stop taking it.
Fast forward to July 15, 2013 and I have that same pressure headache again. I go to the ER and the same doctor who did the first spinal tap in 2011 sees me. They do a CT scan and blood work to check for the usual things but then it’s time to look at things that I’ve had in the past (like high spinal pressure). They suggest a spinal tap.
The spinal tap takes for. ev. er. They try multiple times to get the puncture and the doctor even has to go get another doctor from a different department to try it. At some point, they hit a nerve and I practically jump off the table when a shooting pain goes down my left leg. Finally, they get it and it’s at 20, which is still higher than 17. So they drain off some extra fluid to release some pressure and give me a bandaid. To get rid of the rest of the headache they give me some Torodol and something for nauseousness. Then I was on my way home.
The next day my back hurt so much I could barely get out of bed, and the next day was no better so I called my primary care doctor and made an appointment for today. She looked at my back and counted EIGHT puncture holes there. There was also some adhesive in them from the bandaid so she cleaned it out. She gave me some pain pills to get me through the next few days and a doctor’s note for the entire week so I don’t have to go back to work until Monday. Hopefully I feel better by then, but I’m pretty sure I will.
Something I’m Proud Of: Seeing the doctor when I needed to instead of running away from it.
Three Things I’m Grateful For:
- Having a Job
- My Husband’s Support Through this Physical Illness
- My Employment Support Specialist’s Help Through This
All around me are familiar faces
Worn out places, worn out faces
Bright and early for their daily races
Going nowhere, going nowhere
And their tears are filling up their glasses
No expression, no expression
Hide my head I want to drown my sorrow
No tomorrow, no tomorrow
And I find it kind of funny
I find it kind of sad
The dreams in which I’m dying
Are the best I’ve ever had
I find it hard to tell you
‘Cos I find it hard to take
When people run in circles
It’s a very, very
~ Mad World by Tears for Fears ~
So much for the temporary job. I flipped out. Literally. Stress level through the roof. *sigh*
I called and cancelled the temp job and I felt a little better, but the sleep helped most of all. I’m still battling a huge migraine though. I don’t think running the dryer and making it hot and humid upstairs where I was laying/sitting really helped in that regard though.
So right now I am just listening to music and waiting for hubby to get home from school. He called and he’s on his way. Apparently both of us are feeling sick our stomachs. *another sigh* I hope it’s just something we ate and we’re not getting sick.
I didn’t get any homework completed today but I got research done for an assignment done. I will write up the assignment tomorrow and be done with it, leaving only one assignment for the week and I have to watch the movie Kingdom of Heaven to complete it. Not bad, considering it’s only Thursday.
But I really need to lay down and get this headache to go away so that I can get things done tomorrow or else I am going to be completely useless, just like I was today.
Something I Am Proud Of: Getting the research done for my assignment.
Three Things I’m Thankful For:
- Calming music *love Dido*
- My husband
- I Have A New Job! (swingsandseesaws.wordpress.com)
Waiting for the end to come
Wishing I had strength to stand
This is not what I had planned
It’s out of my control
Flying at the speed of light
Thoughts were spinning in my head
So many things were left unsaid
It’s hard to let you go
~ Waiting for the End by Linkin Park ~
So today wasn’t a good day. I can’t let myself call it a crappy day either, though. I needed to sleep in and the dogs just wouldn’t let me. There was always something to bark at (that needed to be barked at suddenly, with no warning whatsoever) or it was playtime in bed with Mommy and Daddy (even though Mommy and Daddy were sleeping). The more I tried to sleep, the more my head hurt and the more tired I was. I should’ve just gotten up and done something productive instead of trying to sleep. But I really wanted to sleep! *whimpers*
I finally got out of bed at about 2pm. Hubby had a dentist appointment at 3:15. It was just his initial visit to check over his teeth to see what they needed and whatnot. He gets a cleaning next week and later in May he gets an old filling replaced since it had chipped and something got in there. Gross. But necessary work. I finally talked to them about rescheduling my own appointment that inconveniently got cancelled due to no water to the facility and now they can’t get me in until June. Wonderful. So I’m on a cancellation list.
I can feel myself getting more tired and more irritable as I write this. I should probably just wrap up and go lay down in bed to relax. Maybe take my migraine meds? That would probably be a good idea. But hubby is in bed doing homework. (Don’t ask me why he does homework ONLY in bed, we’ve had this discussion before). *sigh* Couch it is, then.
Something I’m Proud Of: Crocheting 2 rows on my sister’s boyfriend’s afghan after months of not working on it.
Three Things I’m Grateful For:
- My two dogs (even though they aggravate me sometimes)
- My husband (even though he does homework where I sleep)
- My head (even though it hurts a lot)
- A Little Homesick But A Good Day Nonetheless (swingsandseesaws.wordpress.com)
- Whose says sleeping is for the dead? (mindfullyhealthy.wordpress.com)
- Modifying Lullabies (practicingempathy.wordpress.com)